Hunter Syndrome 10 Jul 2015 Jared Leto Backs Project Alive I grew up watching My So Called Life with my sister, completely in love with Angela Chase (Claire Danes) and Jordan Catalano (Jared Leto). My sister wouldn't let a word… mcfadyena
Hunter Syndrome 10 Jun 2015 #WhenIGrowUp I want to be… Project Alive began from one photo. One teacher. A kindergarten teacher in Spring Hill, Tennessee, sent home photos with her children at the end of the school year. But little… mcfadyena
Hunter Syndrome 23 Feb 2015 Trey is Running in the Scotiabank 5K this year Just writing this title, my heart catches in my throat. It's a loaded statement, which is an understatement. Loaded because we were told from one doctor Trey would die by… mcfadyena
Hunter Syndrome 10 Dec 2014 Our Kids Change the World I read this quote and it's fitting: "Adversity is like a strong wind. It tears away from us all but the things that cannot be torn, so that we see… mcfadyena
Hunter Syndrome 20 Nov 2014 More family!! The Higginson/Redmond's While we were at Disney World on Trey's Make-a-Wish trip, we missed The Isaac Foundation Gala on November 15. It is a really important event for us and we were sad… mcfadyena
Hunter Syndrome 18 Nov 2014 Trey's Make-a-Wish Trip We went on Trey’s Make-a-Wish trip to Disney World and stayed at Give Kids the World in Florida this past week. I found out a few days before we left… mcfadyena
Hunter Syndrome 13 Nov 2014 What is Gene Therapy? Over the past years we have funded a number of MPS II Gene Therapy Research projects, you can read about them here. We have also received a number of questions… mcfadyena
Hunter Syndrome 26 Sep 2014 Germ Season I have justifiable OCD (Obsessive Compulsive Disorder). My son is alive and thriving due to my obsessive and compulsive cleanliness and germ phobia. I am fully aware that at times,… mcfadyena
Hunter Syndrome 05 Sep 2014 It's Been a While This is Trey & his new service dog, Griffin. Griffin gets to go to hospital appointments, UNC, therapy appointments, swimming lessons and everywhere in between with Trey! I felt it… mcfadyena
Hunter Syndrome 23 Jun 2014 Gene Therapy and The Scotiabank 5K & 1/2 Marathon!! MPS II threw my life upside down. When Ryan and I were pregnant with our first baby, Trey, our midwife told us that although we wouldn’t want to, we should… mcfadyena