Hunter Syndrome 06 May 2007 What a Day Our Tacos for Trey fundraiser yesterday was awesome. It was as close to perfect as a first annual fundraiser could be. Where to start...I’ll go in order. First off, we… mcfadyena
Hunter Syndrome 03 May 2007 An Eventful Infusion Week. #13 Alright...infusion #13. Trey developed a runny nose over the weekend, but we went to the hospital on Monday anyways because he had no other symptoms. They cancelled his ERT for… mcfadyena
Hunter Syndrome 03 May 2007 My part in the launch of Elaprase I have agreed to be a part of the launch of Elaprase in Canada. Elaprase should be approved by Health Canada in mid June. Not only am I completely pleased… mcfadyena
Hunter Syndrome 23 Apr 2007 Infusion #12 is done!!! Infusion #12 is done!!! We (read: Trey) has made it through the riskiest time of infusions without reaction! Although serious reactions can happen up until the six month mark (after… mcfadyena
Hunter Syndrome 23 Apr 2007 The Goods on Tacos for Trey For those of you who are coming or are contemplating on coming to the Tacos for Trey fundraiser, below I have included more information on the event. Hopefully it will… mcfadyena
Hunter Syndrome 02 Apr 2007 A grant to fund & ERT updates We have a grant to fund!! The Canadian MPS Society has agreed to pay half of a $40,000 grant to Dr. Potter at McMaster University who is doing gene therapy… mcfadyena
Hunter Syndrome 12 Mar 2007 Infusion #6 Everything today went well. No reactions. My reason for continuing to update about the infusions when there are no reactions is because infusion reactions have been most common between infusion… mcfadyena
Hunter Syndrome 07 Mar 2007 Interesting Since the article in the Vancouver Sun has come out, I have had the opportunity to speak with quite a few more parents whose children have MPS II, and many… mcfadyena
Hunter Syndrome 05 Mar 2007 Infusion #5, Trey's Birthday, a Story on Shaw Trey turned 3 last Thursday, March 1. We had a great day. In the morning the three of us went to music class with Trey and Ave’s cousin Oskar. We… mcfadyena
Hunter Syndrome 27 Feb 2007 Infusion #4 We arrived at the MDU at 7:30am. It took a little while to get Trey started on Elaprase because the pharmacy was slow and there was a situation in the… mcfadyena
