Hunter Syndrome 29 Jan 2009 Trey is home from his VAD surgery and doing well. Trey is home from the hospital and doing well. We got a call from the hospital this morning asking us to come in earlier, so we were at the hospital… mcfadyena
Hunter Syndrome 22 Jan 2009 Trey’s VAD replacement surgery is this Monday, January 29, 2009 at 2:00pm. Trey’s VAD replacement surgery is this Monday, January 29, 2009 at 2:00pm. His VAD lasted almost exactly two years. I have an appointment tomorrow with the pediatric general surgeon to… mcfadyena
Hunter Syndrome 20 Jan 2009 Bad news first. Trey needs a new VAD. Bad news first. Trey needs a new VAD. Usually, when Trey is hooked up for infusions, he sits and watches TV. He barely even notices the needle or when the… mcfadyena
Hunter Syndrome 13 Jan 2009 We had Trey’s yearly check up this morning with the Orthopedic Clinic at BC Children’s Hospital. We had Trey’s yearly check up this morning with the Orthopedic Clinic at BC Children’s Hospital. Trey was amazing. He had six X-rays of his neck and back done over… mcfadyena
Hunter Syndrome 09 Jan 2009 We had a check up yesterday with the surgeon who did Trey’s carpal tunnel release a few weeks ago. We had a check up yesterday with the surgeon who did Trey’s carpal tunnel release a few weeks ago. The news is great!! Trey can move his right thumb!! It… mcfadyena
Hunter Syndrome 19 Dec 2008 A few weeks back, Trey, Ryan, and I met with Dr. Stockler, as well as Trey’s occupational and physiotherapists, Gay and Iris. I forgot to mention that a few weeks back, Trey, Ryan, and I met with Dr. Stockler, the Biochemical Disease doctor who oversees Trey’s care, as well as Trey’s occupational… mcfadyena
Hunter Syndrome 18 Dec 2008 Trey had his carpal tunnel release surgery today on both hands. Trey had his carpal tunnel release surgery today on both hands. The surgery was successful in that the surgeon was able to do the release and take out the GAG… mcfadyena
Hunter Syndrome 18 Dec 2008 Carpal Tunnel Release Yesterday, I came into the kitchen and Trey was telling Laurel that tomorrow the surgeon’s were going to fix his hands so they feel better. He was going to go… mcfadyena
Hunter Syndrome 09 Dec 2008 Trey will be having his carpal tunnel release surgery for both his left and right hands next Thursday, December 18. Trey will be having his carpal tunnel release surgery for both his left and right hands next Thursday, December 18. I got a call from the wonderful plastic surgery receptionist… mcfadyena
Hunter Syndrome 09 Dec 2008 Full of Thanks I was going to keep my write up about our meeting with the government short, but as I began to write, I didn’t want to stop. And now I’m on… mcfadyena