Hunter Syndrome 19 Mar 2010 Letting Go of Fear The weather has been amazing this past week. And I've been doing yoga at least 3 times per week since the end of January. I feel strong and flexible and… mcfadyena
Hunter Syndrome 14 Mar 2010 A “Surprise Gift” in More Ways than One This article was posted on the Vancouver Aquarium's April 2010 'Waters' online members' newsletter. Click here to read the article, under the section entitled 'Aquarium Heroes'. mcfadyena
Hunter Syndrome 06 Mar 2010 Hearing Test and New Hearing Aids Yesterday we spent 3 hours at the audiologist. Trey was okay because he got to change it up a bit I think (he got to go have a hearing test… mcfadyena
Hunter Syndrome 03 Mar 2010 A busy, but GREAT day. Phew. It's done! :) What a day we had. We started with dropping Ry off at an appointment and going to rheumatology. A rheumatologist checked Trey out, then we saw… mcfadyena
Hunter Syndrome 02 Mar 2010 Trey's 6th Birthday It was yesterday on Monday, March 1. What a big one. Five was big and six is big. Bigger than most. Why? Because of the wait. Because of fear. Since… mcfadyena
Hunter Syndrome 23 Feb 2010 Flowers are Red An ode to why we homeschool: [audio:http://treypurcellcom.nationprotect.net/audio/flowersAreRed.mp3] One of the coolest things about Trey is his confidence and how awesome he thinks he is. With this difference he lives with,… mcfadyena
Hunter Syndrome 14 Feb 2010 Four years… Four years into this journey... for those of you who haven't been with us this whole time, it was four years ago today that we began our journey towards Trey's… mcfadyena
Hunter Syndrome 11 Feb 2010 No surgery for now We saw ENT yesterday and Trey will not be having surgery for now. Yeah! After Trey's 3 years of ERT party (a week and a half ago), I tried one… mcfadyena
Hunter Syndrome 08 Feb 2010 Albert Einstein One more quote for now: "There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a… mcfadyena
Hunter Syndrome 08 Feb 2010 Perspective Another story I love: If you have ever gone through a toll booth, you know that your relationship to the person in the booth is not the most intimate you'll… mcfadyena