Hunter Syndrome 17 Feb 2017 Rare Disease Day- February 28 There are so many "Day's." Anti-bullying Awareness Day, World Thinking Day, Earth Day, World Cancer Day... google it and you'll find days you didn't even know existed! Rare Disease Day… mcfadyena
Hunter Syndrome 14 Feb 2017 D-Day Short but sweet. Y'all might love this given my usual essay style blogs. ;-) Trey was diagnosed 11-years ago today. I was scared of moms like me when Trey was… mcfadyena
Hunter Syndrome 06 Feb 2017 West Van High!! In the past few months I’ve started a number of blogs that got interrupted by life, so I’ll give you a shortened version here, followed by information about our yearly… mcfadyena