Hunter Syndrome 25 Dec 2013 Wishing for a Christmas Miracle When I watched this, I just kept thinking: 'This is a life. This is a life that could be saved.' No matter how different the MPS parent's life is from… mcfadyena
Hunter Syndrome 18 Dec 2013 Shire Willing to Let Jack Die Shire denied Jack life-saving treatment. They first said no last Thursday, at which point The Isaac Foundation implored them to reconsider. They said no again this past Monday. You can… mcfadyena
Hunter Syndrome 02 Dec 2013 Help us Save Jack's Life Jamie Fowler is one of my closest friends in the world. I feel her in my heart and my soul. I love her. Her partner is Jason and they have… mcfadyena
