Hunter Syndrome 25 Jul 2013 IT Dose 23 at BC Children's Hospital It's done. 30mg of Elaprase floating around in Trey's brain in Vancouver, BC, Canada. There were a few hiccups, but it's done. That's all that matters. The doctors at BC… mcfadyena
Hunter Syndrome 22 Jul 2013 Letting Go Trey’s first local intrathecal dose was re-scheduled. That makes it sound simple. It was supposed to be today. Dr. Muenzer was booked to fly in, Joey Howell's Boys with Bigger… mcfadyena
Hunter Syndrome 09 Jul 2013 Phase II/III Intrathecal Trial Update The Phase II/III is getting closer! For those families who have been waiting, it couldn't come soon enough, I know. Here is an update of what I know: Dose: 10mg… mcfadyena
Hunter Syndrome 09 Jul 2013 First intrathecal dose on Canadian soil We have been traveling to North Carolina monthly for 22 doses. On Monday, July 22, Trey will receive his 23rd intrathecal dose as part of the MPS II clinical intrathecal… mcfadyena
