Hunter Syndrome 28 Feb 2013 I Will Fight For You This song is for Trey, for Jamie, Melissa, Andy and Ellen, for MPS parents, and for all parents who would do anything for their kids. [youtube] Our battle with Johnson… mcfadyena
Hunter Syndrome 23 Feb 2013 Johnson & Johnson's Damage Control On Wednesday, February 20, Johnson & Johnson (or more specifically, Janssen Pharmaceuticals, who is a company of Johnson & Johnson) told Andrew McFadyen of The Isaac Foundation that they would… mcfadyena
Hunter Syndrome 22 Feb 2013 Johnson & Johnson: Indifferent, Unethical, Immoral This is a picture of Ryan, Trey, and I moments after Trey’s birth. If you are a parent, you can probably remember and feel that moment, what it was like… mcfadyena
Hunter Syndrome 18 Feb 2013 Intrathecal Trial Update – Words on a Page It is quite strange to see the last few years of your life boiled down to a few paragraphs of text and a line on a chart. It is even… mcfadyena
Hunter Syndrome 13 Feb 2013 Seven Year Anniversary Trey was diagnosed seven years ago tomorrow, Valentine's Day. His 9th birthday is only two weeks later, on March 1 (he'll be at UNC on his birthday). These anniversaries, and… mcfadyena
