Hunter Syndrome 23 Dec 2012 Holiday Thoughts This time of year always brings forth emotion. Mine has been brewing for a bit, but with only two sleeps away from Santa, it's now here. Our kids are SO… mcfadyena
Hunter Syndrome 12 Dec 2012 The Journey of Hope This morning Trey received his fifteenth dose of intrathecal enzyme at UNC. This evening I watched a video made by the National (US) MPS Society called 'The Journey of Hope' that… mcfadyena
