Hunter Syndrome 25 Oct 2012 A Badge of Honour My dear friend Tovah, a dedicated supporter of our MPS II Fund and good friend, shared this letter with me today during hockey practice (not ours, our 7 YO's ;-)).… mcfadyena
Hunter Syndrome 19 Oct 2012 Let's Find the Beauty in Difference. Let's Find the Beauty in All of Us. Ever since Trey was diagnosed, I've had issue with the word disease. I don't like it. It makes MPS II scary. It makes MPS II contagious. It makes MPS II… mcfadyena