Hunter Syndrome 21 Aug 2012 One Year Ago One year ago, our entire lives changed (again). August 19, 2011 will forever be etched in my mind as the most intense and anxious day of my life. Hands down.… mcfadyena
Hunter Syndrome 10 Aug 2012 Project One Million [youtube] It was our first MPS conference in July 2006. Trey was diagnosed in February 2006. Enzyme Replacement Therapy (ERT) for MPS II, Elaprase, was about to be approved by… mcfadyena
