Hunter Syndrome 26 Jun 2012 Less Eventful, but No Less Amazing or Humbling Trey got his ninth dose of intrathecal Elaprase today. No one got sick, no flights were missed, there are no ports to be broken or leak, lumbar puncture and anesthesia… mcfadyena
Hunter Syndrome 09 Jun 2012 The Highs (after the lows) Trey did get his dose a week and a half ago. The boy is lucky. For the past three monthes, Trey got the bugs his sister, brother and dad passed… mcfadyena
