Hunter Syndrome 23 Mar 2012 The Dant Family If you're looking for a little inspiration in your day. If you're doubting that one person can make a difference. It doesn't get much better than this. We can and… mcfadyena
Hunter Syndrome 16 Mar 2012 Mother Bear I seem to have developed multiple personality disorder. I have always had different roles: mother, sister, daughter, friend, neighbor etc., but now I think I’m developing two separate personalities. I'm… mcfadyena
Hunter Syndrome 10 Mar 2012 A Deep Sigh of Relief I wrote this blog in January, after Trey and Ryan returned from Trey's third intrathecal dose of enzyme. I wasn't sure about posting it, but now I am. In the past… mcfadyena
Hunter Syndrome 10 Mar 2012 Fifth Intrathecal Dose at UNC Trey received his 5th intrathecal dose of 30mg of Elaprase Tuesday, March 6 by lumbar puncture. His white count was again less than one, which means no reactions. Yahoo! By… mcfadyena