Hunter Syndrome 13 Feb 2012 As we watch the bridge… Family and friends have asked me 'how it's going' in the trial. Melissa Hogan, who I've now often referred to in my blog, has just put it perfectly, below. It… mcfadyena
Hunter Syndrome 07 Feb 2012 IT dose #4 complete! Well, #4 is complete. Love it. There have been annoying hiccups in the journey, such as being detained by US security at the airport for hours before someone coming in… mcfadyena
Hunter Syndrome 03 Feb 2012 Observations from the trial Most people who know Trey and know about the trial, want to know what changes I've seen in Trey. He's now had three doses of intrathecal Elarpase. He gets his… mcfadyena
Hunter Syndrome 01 Feb 2012 The Low Road The below poem came to mind when a mum got in touch with me, thanking me for joining in her battle to fight for her 3 year old son to… mcfadyena
