Hunter Syndrome 22 Dec 2011 Carpal Tunnel Release booked & Osteopath appointment After spending a lot of time speaking with Trey's plastic surgeon, Dr. Verchere, and a hand surgeon at the University of Minnesota, Dr. Van Heest, who is an expert in… mcfadyena
Hunter Syndrome 19 Dec 2011 An update in honour of my grandma My eighty-six year old grandma, Omi, got her first ever computer and a wireless internet connection about a month ago, so she coud read Trey's blog (she lives a five… mcfadyena
Hunter Syndrome 14 Dec 2011 Online Auction to Benefit MPS II Research Our second online auction is up! It will be live from Dec. 14-23 and will benefit the MPS II Research Fund (to read more about the fund and how it… mcfadyena
Hunter Syndrome 13 Dec 2011 2nd IT Elaprase dose complete Trey's second IT Elaprase dose, of 30mg, is complete. He received it this afternoon via lumbar puncture under general anesthetic. Long story as short as possible, a doctor accesses Trey's… mcfadyena
