Hunter Syndrome 29 Oct 2011 Emergency removal of Trey's IT port Last night, Trey had emergency surgery to remove his new intrathecal port that was infected. Due to overwhelming support and love and requests for updates, here is the low down… mcfadyena
Hunter Syndrome 18 Oct 2011 Trey's first IT dose- a MONUMENTAL day Trey’s first dose as part of the MPS II Intrathecal trial was successful. We were the second case of the day and Trey was brought back at 8:45am. Dr. Muenzer… mcfadyena
Hunter Syndrome 17 Oct 2011 Trey's first intrathecal dose is tomorrow Ryan is with Trey right now, getting his fine and gross motor skills assessed. I am sitting in the waiting room. It is our third appointment of the day. First,… mcfadyena
Hunter Syndrome 07 Oct 2011 Intrathecal port-a-cath implantation complete! What an emotional roller coaster we’ve been on. I find it hard to blog because I don’t even know what to blog about. I could blog about having the time… mcfadyena
