Hunter Syndrome 27 Aug 2011 Public Service Announcement by Jeffrey Bowyer-Chapman & Elyse Levesque We have been wowed and amazed by the overwhelming support for our Gala and cause from the Vancouver and larger film industry. Please check out the video below to view… mcfadyena
Hunter Syndrome 26 Aug 2011 NORTH VANCOUVER BOY FIRST IN CANADA TO RECEIVE BREAKTHROUGH DRUG News Release NORTH VANCOUVER BOY FIRST IN CANADA TO RECEIVE BREAKTHROUGH DRUG Vancouver, BC – On August 19th Deb Purcell’s Facebook status read “And now I wait. The longest four… mcfadyena
Hunter Syndrome 20 Aug 2011 Qualified for the IT trial (and randomized to drug) Reading the title is still mind boggling for me. For the past year, I have been researching hydrocephalus in MPS, researching symptoms, interviewing mums whose kids developed hydrocephalus as to… mcfadyena
