Hunter Syndrome 16 Jun 2011 Yearly appointment review with Dr. Stockler I had a conference call yesterday with Dr. Stockler and her wonderful resident Dr. Clara Van Karenebeek to get results from the shwack of tests Trey recently had. Trey's ultrasound… mcfadyena
Hunter Syndrome 15 Jun 2011 MPS II IT trial on hold Well, I don't really know what to say. The UNC Institutional Review Board has put the trial on hold. Kids who currently have implanted devices and are receiving drug, will continue,… mcfadyena
Hunter Syndrome 10 Jun 2011 Some good news in the midst of sadness Ry's mum passed away yesterday, so we are filled with grief. I'm not going to go into more because it's Ry's mum and not my place. However, I got home… mcfadyena
Hunter Syndrome 07 Jun 2011 Yearly appointments The above photo is of Trey & Nicklas Harkins (MPS I) at the MPS Cup a couple weeks ago. It's not the best photo of Nicklas, but Trey was so… mcfadyena
