Hunter Syndrome 28 Mar 2011 Once Upon a Cure, a Gala for Hunter Syndrome Research Just like Alice plunged into Wonderland, all families diagnosed with MPS II are plunged into a world previously unknown to them that they must learn to navigate. Just like Alice, this world… mcfadyena
Hunter Syndrome 28 Mar 2011 Heading back to North Carolina After a long wait, we have been asked to come back for final qualifying tests for the IT trial at UNC. We will be going back for the week of… mcfadyena
Hunter Syndrome 18 Mar 2011 Dr. Lloyd-Evans Grant Funded!! We have funded a $50,000 research grant to Dr. Emyr Lloyd-Evans at the University of Cardiff. Below is a summary of the research he is conducting: "We are aiming to… mcfadyena