Hunter Syndrome 24 Nov 2010 Here we go again… UNC We're off for another trip to UNC to have Trey's development tested as part of the screening study for the MPS II intrathecal trial. Our test dates are January 11… mcfadyena
Hunter Syndrome 03 Nov 2010 Shanti, Shanti, Shanti It's Sanskrit and it means 'Peace, peace, peace.' For four and a half years, while I was wondering and waiting to find out whether Trey would take one path, lose… mcfadyena
