Hunter Syndrome 23 Feb 2010 Flowers are Red An ode to why we homeschool: [audio:http://treypurcellcom.nationprotect.net/audio/flowersAreRed.mp3] One of the coolest things about Trey is his confidence and how awesome he thinks he is. With this difference he lives with,… mcfadyena
Hunter Syndrome 14 Feb 2010 Four years… Four years into this journey... for those of you who haven't been with us this whole time, it was four years ago today that we began our journey towards Trey's… mcfadyena
Hunter Syndrome 11 Feb 2010 No surgery for now We saw ENT yesterday and Trey will not be having surgery for now. Yeah! After Trey's 3 years of ERT party (a week and a half ago), I tried one… mcfadyena
Hunter Syndrome 08 Feb 2010 Albert Einstein One more quote for now: "There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a… mcfadyena
Hunter Syndrome 08 Feb 2010 Perspective Another story I love: If you have ever gone through a toll booth, you know that your relationship to the person in the booth is not the most intimate you'll… mcfadyena
Hunter Syndrome 08 Feb 2010 A quote I've always loved quotes. Here's one I just found: "This is my simple religion. There is no need for temples; no need for complicated philosophy. Our own brain, our own… mcfadyena
Hunter Syndrome 03 Feb 2010 Three years of ERT We had a party at the Medical Day Unit on Monday to celebrate the three year mark of Trey's infusions. I can't quite believe it. Three years. He doesn't even… mcfadyena
