Hunter Syndrome 31 Jul 2009 The Story of Stuff Watch this: http://www.storyofstuff.com The above link is not about MPS II or Trey directly, but I figure that as long as I have hope that Trey will live a long and… mcfadyena
Hunter Syndrome 24 Jul 2009 Overwhelmed, exhausted, ecstatic I have been thinking about this post for years. And right now I am probably too overwhelmed and exhausted to do it justice. But I'm going to try anyways. Since… mcfadyena
Hunter Syndrome 10 Jul 2009 Simon Ibell: The making of a health-care crusader Our hero, Simon Ibell, is once again in the news. This time the article is about Simon and his life growing up with Hunter Syndrome. I've heard most of the… mcfadyena
Hunter Syndrome 09 Jul 2009 Traveling to UNC for IT trial testing & final 'Time for a Cure' tally I spoke with Dr. Muenzer today. Trey, Ryan and I will be traveling to UNC for developmental testing done by Dr. Muenzer's team on July 19. Testing will happen on July 21… mcfadyena
