Hunter Syndrome 18 Jun 2009 Test of Metal & MPS II IT Trial A few monthes ago, Trey's speech and language pathologist's husband, Salim, approached us with the idea of doing a bike race and raising money for Trey. Blown away that he… mcfadyena
Hunter Syndrome 17 Jun 2009 The Disappearing Male As I mentioned in the news section, I watched a documentary on CBS NewsWorld called 'The Disappearing Male.' It is worth a watch. I mentioned the documentary to someone this… mcfadyena
Hunter Syndrome 17 Jun 2009 The tubing used in Trey's infusions Yesterday was an 'I'm a good mom' day. After hearing about a documentary called 'The Disappearing Male', the link for which is in the next blog, I got on the… mcfadyena
Hunter Syndrome 17 Jun 2009 League MVP for Baseball We received some more excellent news yesterday. A few monthes ago, when Trey's coach and Vancouver Minor Baseball found out about Trey's difference and our 'Time for a Cure' fundraiser,… mcfadyena