Hunter Syndrome 29 May 2009 Trey had an opthamology appointment today… Trey had an opthamology appointment today. He REALLY didn't want to go. I had to drag him out the door and into the van. However, our wonderful afternoon began with… mcfadyena
Hunter Syndrome 27 May 2009 $9,000 raised with 'Time for a Cure' We've done tallies to date for the amount of money raised with 'Time for a Cure.' $9,000. Thank you so much to everyone who participated. I do expect a bit… mcfadyena
Hunter Syndrome 16 May 2009 We've done a draw for our 'Time for a Cure' winners!! This morning Trey, Avery, Sadie, my mom and I drew winners for our 'Time for a Cure' participants (www.timeforacure.ca). Read below to find out who won what: Trip to Frog's… mcfadyena
Hunter Syndrome 15 May 2009 Today is International MPS Awareness Day Today is International MPS Awareness Day. What does that mean and what can you do? Talk about MPS with anyone who will listen!! The first step in this battle with… mcfadyena
Hunter Syndrome 11 May 2009 Rare Disease Article in BC Parent Magazine An article I wrote about the situation with rare diseases in Canada is in the most recent edition of BC Parent Magazine. Click here to read the article. mcfadyena
Hunter Syndrome 11 May 2009 Happy Belated Mother's Day! THE NEXT SURVIVOR SERIES Six married men will be dropped on an island with one car and 3 kids each for six weeks. Each kid will play two sports and… mcfadyena
Hunter Syndrome 02 May 2009 Andy & Hope Andrew McFadyen of the Isaac Foundation (www.theisaacfoundation.com) stayed with us last night while he was in town taking part in the Liberal Convention. He's running for government. What an awesome… mcfadyena
Hunter Syndrome 01 May 2009 Effects I often wonder how much of an effect this diagnosis has had on me. Yesterday I was sitting on the floor in our house holding my tummy due to menstrual… mcfadyena
