Hunter Syndrome 25 Apr 2009 Welcome to Holland I want to preface the following story with the one change I'd make if it were about my journey with Trey: I don't see Trey as having a disability. I… mcfadyena
Hunter Syndrome 17 Apr 2009 The Intrathecal Trial is Moving Ahead The IT trial is moving ahead. I spoke with Dr. Muenzer yesterday, and he said the following information is now public info and okay to share. I wrote as quickly… mcfadyena
Hunter Syndrome 01 Apr 2009 Another audiology Appointment We had an appointment today to pick up Trey's new ear moulds (one blue and one green). Sara, his audiologist, also decided to do bone conduction tests to see how… mcfadyena
