Hunter Syndrome 30 Mar 2009 Decreased the Elaprase Rate After speaking with some parents and finding out the recommendations of doctors from Shire and doctors involved with the trial, we have decided to slow Trey's Elaprase rate back down,… mcfadyena
Hunter Syndrome 29 Mar 2009 Trey is on the Cover of West Coast Families Trey is on the cover of the April issue of West Coast Families magazine and information about our up coming fundraiser, "Time for a Cure" is inside. To view a… mcfadyena
Hunter Syndrome 23 Mar 2009 Cardiology & Increased Rate Trey had an echo, ECG and visit with a cardiologist today, Dr. Human. Although Trey has had a number of heart tests in the past, this is our first visit… mcfadyena
Hunter Syndrome 19 Mar 2009 Trey had an audiology appointment today Trey had an audiology check up today. His hearing is about the same as it was at his last check up in December. To give you an idea of where… mcfadyena
Hunter Syndrome 16 Mar 2009 Speaking of Children A story about Trey is in the Spring 2009 issue of "Speaking of Children," a magazine published three times a year by the BC Children's Hospital Foundation. Click here to… mcfadyena
