Hunter Syndrome 29 Jan 2009 Trey is home from his VAD surgery and doing well. Trey is home from the hospital and doing well. We got a call from the hospital this morning asking us to come in earlier, so we were at the hospital… mcfadyena
Hunter Syndrome 22 Jan 2009 Trey’s VAD replacement surgery is this Monday, January 29, 2009 at 2:00pm. Trey’s VAD replacement surgery is this Monday, January 29, 2009 at 2:00pm. His VAD lasted almost exactly two years. I have an appointment tomorrow with the pediatric general surgeon to… mcfadyena
Hunter Syndrome 20 Jan 2009 Bad news first. Trey needs a new VAD. Bad news first. Trey needs a new VAD. Usually, when Trey is hooked up for infusions, he sits and watches TV. He barely even notices the needle or when the… mcfadyena
Hunter Syndrome 13 Jan 2009 We had Trey’s yearly check up this morning with the Orthopedic Clinic at BC Children’s Hospital. We had Trey’s yearly check up this morning with the Orthopedic Clinic at BC Children’s Hospital. Trey was amazing. He had six X-rays of his neck and back done over… mcfadyena
Hunter Syndrome 09 Jan 2009 We had a check up yesterday with the surgeon who did Trey’s carpal tunnel release a few weeks ago. We had a check up yesterday with the surgeon who did Trey’s carpal tunnel release a few weeks ago. The news is great!! Trey can move his right thumb!! It… mcfadyena