Hunter Syndrome 29 May 2008 In the past two weeks, Trey has had a number of appointments in addition to his weekly Enzyme Replacement Therapy infusions In the past two weeks, Trey has had a number of appointments in addition to his weekly Enzyme Replacement Therapy infusions: neurodevelopment tests in North Carolina, ENT, opthamology, rheumatology, nutritionist,… mcfadyena
Hunter Syndrome 05 May 2008 Tacos for Trey!!!!!!!!!!!!! I still have a smile on my face from Saturday. How can I not? The number of people who supported us is unbelievable. I don’t even know where to begin… mcfadyena