Hunter Syndrome 27 Feb 2008 Steve Nash, Rare Disease Day It is very timely that this Friday we (Canada) will be celebrating our first ever International Rare Disease Day (more about it below). This past weekend, Kirsten Harkins and Simon… mcfadyena
Hunter Syndrome 05 Feb 2008 One Year of ERT! Today Trey has been on ERT for one year. We had a small party at the MDU yesterday for his 53rd infusion with cake, presents and many many thanks to… mcfadyena
Hunter Syndrome 05 Feb 2008 A Fantastic Year Trey began ERT one year ago today. What a fantastic year it has been. He has not missed one infusion, which is unbelievable. He is growing like a weed and… mcfadyena
