Hunter Syndrome 21 Dec 2007 What I'm Talking About In my last entry I spoke about being attracted to people who are real. Well, here’s an example. This excerpt is taken from a friend of mine’s Caringbridge website. Her… mcfadyena
Hunter Syndrome 21 Dec 2007 The Connection, Winter Issue I copied the below out of the Winter issue of the Canadian MPS Society’s newsletter, The Connection: Support Patients with Rare Disorders in their Fight for Life-Saving Therapy “Canada is… mcfadyena
Hunter Syndrome 18 Dec 2007 Life Experiences In the past weeks, we have had a bit of a rough go with adjusting to life with Sadie. Ry went back to working long film hours, often at night,… mcfadyena
Hunter Syndrome 18 Dec 2007 All sorts of medical updates… Happy Holidays! It’s been a while since I’ve updated. Here’s what’s new: another boy started ERT for Hunter Syndrome last Wednesday at BC Children’s Hospital. I consider this big news… mcfadyena
