Hunter Syndrome 21 Jun 2007 Elaprase approval, ultrasound, cardiology Elaprase has been approved by Health Canada!! This is a huge step because it means that Elaprase is now accessible to all people in Canada affected by Hunter Syndrome. It… mcfadyena
Hunter Syndrome 10 Jun 2007 The MPS Cup On a positive note, last night was the MPS Cup. It was so much fun. In the afternoon we attended the Fantasy hockey game where friends and family came to… mcfadyena
Hunter Syndrome 09 Jun 2007 A Sad Day Last night I received an email that my good friend, Amy Donaldson, had passed away that morning. She died after a hard battle with cancer. I was first introduced to… mcfadyena
Hunter Syndrome 05 Jun 2007 BCCHF Miracle Weekend, MPS Cup & I'm preggers! This past weekend, Trey, Ave, Ry and I participated in the BC Children’s Hospital Foundation Miracle Weekend. It was an amazing event with tons of stuff for the kids to… mcfadyena
Hunter Syndrome 01 Jun 2007 Surgery, check ups, Steve Nash Trey had surgery on May 24 for both his inguinal and umbilical hernias. Since a slight temperature and trip to the hospital the next day to make sure everything was… mcfadyena
