Hunter Syndrome 27 Feb 2007 Infusion #4 We arrived at the MDU at 7:30am. It took a little while to get Trey started on Elaprase because the pharmacy was slow and there was a situation in the… mcfadyena
Hunter Syndrome 26 Feb 2007 Emails from Texas & Quebec We got home tonight after just under a week in San Diego. It was great. Not a lot of sleep and Trey, Ave and I got the stomach flu, but… mcfadyena
Hunter Syndrome 19 Feb 2007 Infusion #3 We arrived at the MDU at 7:15 am. Trey had his temperature, blood pressure, weight, height, and a listen to his chest done, and then the Emla was put on.… mcfadyena
Hunter Syndrome 15 Feb 2007 A Couple of Calls from Alberta In the past 2 days I have gotten 2 calls from Alberta. One from a man from the U of A who works with a family who has three boys… mcfadyena
Hunter Syndrome 14 Feb 2007 One year. Wow. It’s been one year since we began this journey. Valentine’s Day was the day we found out Trey might have an enlarged liver. February 20 was the end of the… mcfadyena
Hunter Syndrome 13 Feb 2007 Infusion #2 (yesterday) Infusion #2 was easy breezy compared to #1. We didn’t need a urine sample, the kids (and I) didn’t need to be clean and organized for reporters and photographers, Trey… mcfadyena
Hunter Syndrome 09 Feb 2007 Reactions, hospitals, hernias… what a week! This week was a busy one. Monday night, after Trey’s first infusion, Trey woke up twice with gas, major bloating, and diarrhea (I’ll leave the details out!). We also noticed… mcfadyena
Hunter Syndrome 08 Feb 2007 Kirsten's Response to the Editorial After speaking with Kirsten Harkin’s, the ED of the Canadian MPS Society, she drafted this letter to the Vancouver Sun: Re: Health Care’s successes, like little Trey, pose the challenges,… mcfadyena
Hunter Syndrome 07 Feb 2007 An Editorial in Response to Trey's article There is an editorial in today’s Vancouver Sun, in response to the article Pamela Fayerman wrote about Trey in yesterday’s paper. Here’s the link: http://www.canada.com/vancouversun/news/editorial/story.html?id=74897f7e-c606-4f73-837d-053d482d5c0d&k=27496. I have spent the day… mcfadyena
Hunter Syndrome 06 Feb 2007 The Front Page of 'The Vancouver Sun' We were overwhelmed today with love and support from so many people congratulating us on Trey’s successful first treatment and the front page article in the Vancouver Sun. Click here… mcfadyena
