Hunter Syndrome 30 Dec 2006 Donating Blood Hello. We have no new news on Trey’s front, but I am writing to invite you all to donate blood or sign up to become a part of the Bone… mcfadyena
Hunter Syndrome 22 Dec 2006 Dr. Charlie Peters This morning I spoke with Dr. Charlie Peters, from Mercy Hospital in Kansas City. He worked for a long time with Dr. Krivit (a well known and well respected and… mcfadyena
Hunter Syndrome 19 Dec 2006 A Decision is Made So we’ve made a decision. ERT. And there’s a whole lot of emotions which go along with that decision. It is possible that one day Ryan and I may have… mcfadyena
Hunter Syndrome 15 Dec 2006 My floating Head… Well, we’re back from our appointment with Dr. Schultz and we have still made no decisions. This is not a bad thing, we actually kind of expected it. I just… mcfadyena
Hunter Syndrome 07 Dec 2006 Conversation with Dr. Kurtzberg I spoke with Doctors Kurtzberg and Szabolcs this morning from Duke. Where to start...if Avery is not a 6 of 6 match, she thinks that there will not/should not (I’m… mcfadyena
Hunter Syndrome 06 Dec 2006 MPS Society Fundraising Letter This is the letter that Kirsten Harkins and I wrote for the Canadian MPS Society's Annual mailer. Click here to read the letter. mcfadyena
Hunter Syndrome 06 Dec 2006 A Little More Transplant Info We met with Dr. Stockler today (Trey also got x-rays to check a ridge on his head, that could be craniosynostosis...which Dr. Stockler didn’t seem concerned about and neither are… mcfadyena
Hunter Syndrome 01 Dec 2006 Silk FM Radio Marathon Participation helped to raise funds for the BC Children's Hospital Fund. Click on the play button to listen. [audio:http://treypurcellcom.nationprotect.net/audio/radiothon2006.mp3] mcfadyena
